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I met Michelle Zimmerman at an event for femtech startups last year. It was the kind of thing where you mingle and work your way around the room, but when Michelle and I started talking, we stayed talking for a long time. We have a bunch of things in common: we’re both Canadian, and we’re both ‘previvors’ - a term and a concept that Michelle’s company, ‘Previvor Edge’, a cancer prevention and early detection clinic, is built on. Even after my mom was diagnosed with ovarian cancer, it took me years to make the decision to get a genetics test. The exact moment when I found out I was positive for a gene mutation that predisposed me to cancer is documented in this episode, all the way back in season 1. That genetics test kick started a series of events: removal of my fallopian tubes and ovaries, which in turn led to surgical menopause, and eventually HRT to manage those debilitating symptoms. It changed the way I live, and think about my body, and women’s health more broadly. Michelle’s experience mirrored mine. “I've been steeped in this space for almost a decade, and even I get anxious when I think about cancer. I got anxious when I took my own genetic test, even though I knew that that information would be empowering, because cancer is scary.” And she explained: the question isn't whether you should get tested, but whether the information you get back is actionable: will knowing change what you do, how you live your life?
Michelle’s company has developed an assessment “to give people a quick pulse on where they are at with respect to their cancer risk” which you might find a useful starting point if you want to embark on this journey yourself. If you’re a previvor too, I’d love to hear your experience. What else is going on with me:
Join the conversation on LinkedIn, or reply to this email with your experiences of the pain scale.
During that time, when I couldn't sleep at night, I would walk the hallways of Victoria General to get my step count up, and developed a familiarity - maybe a Stockholm Syndrome-like affection for this old, weird relic of a hospital. I spent last month watching medicine at work in so many ways, and in the quieter moments it’s given me much to think about for material on Overlooked in the coming months. Mom is home from the hospital now, and recovering in body, mind and spirit. Wishing you the best of health, Golda
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Overlooked is a podcast about women's health which features immersive personal storytelling in each episode. Subscribe to the newsletter to learn more about the guests and topics the show covers, and to hear about live podcast tapings and other events.
This week’s episode of Overlooked features stories from our very first cohort of First Person Health, a new workshop which helps participants tell their story in sound. The idea for First Person Health came from the first season of Overlooked, where I used my mom's audio diaries to craft a larger story about ovarian cancer. I’ve been working professionally in audio for 25 years now, but I feel strongly that the skills I leaned on to create that first season can be learned and used by anyone,...
Last month, I saw an image of my brain. 'Golda's grey matter' On the 29th of December, I took myself off to the emergency room after a blinding headache lit up my forehead. The pain was off the charts - I tried to describe it in the audio essay I did for this week’s episode. Listen to the episode I went to my closest emergency room. It’s the kind of facility where you wonder if you’re just not better off at home, but I stayed the course, eventually spending about seven hours there. At the ER,...
The language Cait Reeves uses to describe pain is truly unforgettable. Cait lived with adenomyosis for years before she got a diagnosis, which came about through her determined efforts to get to the bottom of what was causing this intense pain. She used an analogy to describe to her doctor what the pain in her womb felt like: a garden trowel carving out the insides of a pumpkin. Her doctor winced too. Adenomyosis is a condition where the tissue in the lining of the uterus grows into the...